We were in Ottawa last Friday to review the last swallowing test. I was a bit depressed after seeing the lack of progress because I wondered if I would ever be able to eat food or drink again. I fought back gallantly later in the evening by cutting a slice of 3 year old Balderson cheese and chewing it thoroughly in my mouth till it was a gooey pulp. The flavour was intoxicating and I was able to swallow some of it. There is nothing wrong with my sense of taste or smell so this may be one way to compensate for my limited swallowing - for now. I can also taste fine wines but swirl and spit will be required. Scotch is off limits though because it would be a crime to waste it.
Good news for pain management is that I am in the process of switching to a Fentanyl patch which lasts 3 days instead of liquid morphine every 4 hours. So much easier to manage.
More exciting good news is that I got a call yesterday for an appointment to have a stomach feed tube implanted on February 2nd so I can get rid of the tube hanging from my nose. I will be like the "Borg" in "Star Trek" and when it is time to feed I will just plug myself into a machine. There is even the possibility of using a special pump for night time feeding so that will free up lots of spare time during the day. I am usually a slow eater so when I go out for lunch with friends I usually just listen. But now, I will be able to talk, talk, talk! Too bad for you guys!
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